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resources:resource [2021/04/17 20:43] bpaddock [Invisible Disabilities Association] | resources:resource [2021/04/17 20:47] (current) |
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| ====== Pain Support Organizations ====== |
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[[http://www.foresttennant.com/pdfs/Intractable-pain-guide-to-pain-free-hours.pdf|Intractable Pain Guide to Pain Free Hours]] | [[http://www.foresttennant.com/pdfs/Intractable-pain-guide-to-pain-free-hours.pdf|Intractable Pain Guide to Pain Free Hours]] |
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| ====== Adverse Drug Events ====== |
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[[http://www.recallreport.org|Recall Report]] was created to provide comprehensive health and safety information relating to dangerous medications and products. | [[http://www.recallreport.org|Recall Report]] was created to provide comprehensive health and safety information relating to dangerous medications and products. |
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Because information like this is more important than ever, [[http://www.recallreport.org|Recall Report]] also features up to date news and press alerts on the most recent recalls and warnings. | Because information like this is more important than ever, [[http://www.recallreport.org|Recall Report]] also features up to date news and press alerts on the most recent recalls and warnings. |
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| ====== Spinal CSF Leak Foundation ====== |
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"The [[http://spinalcsfleak.org|Spinal CSF Leak Foundation]] was established in June 2014 by individuals affected with spinal CSF leaks. | "The [[http://spinalcsfleak.org|Spinal CSF Leak Foundation]] was established in June 2014 by individuals affected with spinal CSF leaks. |
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| ====== Do you have enough spoons? ====== |
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[[http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory|"The Spoon Theory": Now to explain Chronic Pain to the non-sufferer.]] | [[http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory|"The Spoon Theory": Now to explain Chronic Pain to the non-sufferer.]] |
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Support groups on [[https://www.facebook.com|Facebook]], listed alphabetically: | ====== Support Groups ====== |
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| Support groups on [[https://www.facebook.com|Facebook]], listed alphabetically: |
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[[https://www.facebook.com/ArachnoiditisSocietyForAwarenessAndPrevention?fref=http://www.kpaddock.com|Arachnoiditis Society for Awareness and Prevention (ASAP)]]. The condition remains unrecognized and often undiagnosed when the cause is linked to invasive spinal procedures such as injections. | [[https://www.facebook.com/ArachnoiditisSocietyForAwarenessAndPrevention?fref=http://www.kpaddock.com|Arachnoiditis Society for Awareness and Prevention (ASAP)]]. The condition remains unrecognized and often undiagnosed when the cause is linked to invasive spinal procedures such as injections. |
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Christy from [[http://wondermoms.org/|[http://wondermoms.org/]] passed on these resources that might help families with special needs during this very trying time of COVID: | ====== Wonder Moms ====== |
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| Christy from [[http://wondermoms.org/|http://wondermoms.org/]] passed on these resources that might help families with special needs during this very trying time of COVID: |
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* [[https://www.justgreatlawyers.com/legal-guides/special-needs-trusts|Special Needs Trusts: What Parents and Caregivers Need to Know]] | * [[https://www.justgreatlawyers.com/legal-guides/special-needs-trusts|Special Needs Trusts: What Parents and Caregivers Need to Know]] |