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--- resources:resource [2014/11/27 14:49]
bpaddock Added Quinolone Vigilance Foundation.
+++ resources:resource [2021/04/17 20:47] (current)
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+====== Pain Support Organizations ======
 [[http://www.foresttennant.com/pdfs/Intractable-pain-guide-to-pain-free-hours.pdf|Intractable Pain Guide to Pain Free Hours]]
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+====== Adverse Drug Events ======
+[[http://www.recallreport.org|Recall Report]] was created to provide comprehensive health and safety information relating to dangerous medications and products.
+The number of drug recalls issued by the FDA has ballooned in recent years, from just 166 in 2004 to well over 1,000 in 2014. Too many of these recalls come after patients or consumers have been harmed. For example, 64 people died in 2012 from fungal meningitis contracted from contaminated steroid injections. These injections and others like it were eventually recalled.
+In 2013 Johnson & Johnson was found guilty of illegally marketing Risperdal, an antipsychotic medication known to be harmful to young and elderly patients, and a drug that has been recalled multiple times.
+Because information like this is more important than ever, [[http://www.recallreport.org|Recall Report]]  also features up to date news and press alerts on the most recent recalls and warnings.
+----
+====== Spinal CSF Leak Foundation ======
 "The [[http://spinalcsfleak.org|Spinal CSF Leak Foundation]] was established in June 2014 by individuals affected with spinal CSF leaks.
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+====== Do you have enough spoons? ======
 [[http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory|"The Spoon Theory": Now to explain Chronic Pain to the non-sufferer.]]
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-Support groups on [[https://www.facebook.com|Facebook]], listed alphabetically:
+====== Support Groups ======
+Support groups on [[https://www.facebook.com|Facebook]], listed alphabetically:
 [[https://www.facebook.com/ArachnoiditisSocietyForAwarenessAndPrevention?fref=http://www.kpaddock.com|Arachnoiditis Society for Awareness and Prevention (ASAP)]].  The condition remains unrecognized and often undiagnosed when the cause is linked to invasive spinal procedures such as injections.
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 [[https://www.facebook.com/groups/644320112290719/|PTC/IH Posts, Thoughts,  Memes and Comic Relief]]
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+====== Wonder Moms ======
+Christy from [[http://wondermoms.org/|http://wondermoms.org/]] passed on these resources that might help families with special needs during this very trying time of COVID:
+  * [[https://www.justgreatlawyers.com/legal-guides/special-needs-trusts|Special Needs Trusts: What Parents and Caregivers Need to Know]]
+  * [[https://sesamestreetincommunities.org/topics/traumatic-experiences/|Resources for Kids in Trauma]]
+  * [[https://www.bigrentz.com/blog/sensory-friendly-home-modifications-autism-sensory-processing-disorder|Creating a Sensory Friendly Home]]
+  * [[http://www.rent.com/blog/how-to-find-an-accessible-apartment/|How to Find an Accessible Apartment]]
+  * [[https://www.health.harvard.edu/blog/making-special-education-work-for-your-child-during-covid-19-2020102621189|Making Special Education Work for Your Child During COVID]]
+  * [[https://www.apartmentguide.com/blog/disability-apartments-looks-features/|Looks and Features of Accessible Apartments]]
+  * [[https://www.apa.org/topics/covid-19/disability-tip-sheet|Coping with Covid Stress]]