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Karen's saga is now part of the documentary Pain Warriors Movie. Watch it on:
Note that the cost may vary with your location and which of the above sources you choose. The distributor Gravitas Ventures sets the price, we have no control over it.
Katrina L Schmid PhD BAppSc (Optom) (Hons) GradCertEd (Higher Ed) GradCertOcThera SFHEA
Version of Record online:02 June 2020
https://doi.org/10.1111/cxo.13102
~~DISCUSSION~~
It also appears that giving can help us cope with pain. A 2017 study found chronic pain sufferers who volunteered reported decreased pain along with an improved sense of purpose. – https://www.cnn.com/2019/12/30/health/volunteering-reduces-pain-wellness/index.html
Altruistic behaviors relieve physical pain.
~~DISCUSSION~~
A victim of the Big Pharma Medical Establishment is creating a feature length movie about how legal pharmaceuticals kill and maim people.
By Shelly Godwin for Karen on what would have been her 44th birthday today [in 2013]:
“I wish you were here today Even for just a little while So I could say happy birthday and see you bealful smile
The only gifts today will be The gifts you left behind The laughter, joy and happiness Precious memories… the best kind.
Today I'll do my very best To try and find a happy place.. Struggling to hide my heavy heart And the tears on my face
I'll set quietly and look at your picture Thinking of you with love I hope you're doing OK In heaven up above. May the angeis hoid you close And sing you a happy song…
And I'll sending wishes to you Today and all year long
Happy birthday.”
To understand how we got to this point, please read: When Pain is Relentless by Andrea J. Buchanan.
I can't make it through it without crying.
Dr Myles Gart wrote a piece entitled “Pain is not the fifth vital sign” Medical Economics on May 20th, 2017. http://medicaleconomics.modernmedicine.com/medical-economics/news/pain-not-fifth-vital-sign
I do not believe Dr Gart has any experiance with Chronic Pain. This is my Letter to the Editor response to Dr Gart:
“… First and foremost, we must bury the claim of pain being the fifth vital sign and replace it with a 21st Century pain assessment tool that incorporates objective evidence and measures of pain. …”
Dr Gart, at this moment are you hungry? In your lifetime have you ever been hungry? Hunger is a type of pain. Did you treat that pain by consuming a substance?
Please correct me if I am wrong. To my knowledge there is no objective test, no simple Pain Meter, that will show me that you are hungry. Yes we could look at enzymes and such. Will that truly tell me just how hungry you are objectively?
If there is no objective test for a pain as simple as hunger, that each of us experience most every day, what hope does a person in Chronic Pain have?
In Ohio the Governor is now practicing medicine by decreeing that there can be no more than seven days of opiate pain medication. Perhaps he should discuss that with the person that was hit by a train and survived with most every bone broken.
My wife Karen died of suicide to stop the pain she experienced for over over 20 years, due to the failure of the Medical Establishment as a whole. THIS IS THE REALITY OF Chronic Pain.
is now required reading at Duke School of Medicine to educate future Neurologists about the realities of Chronic Pain.
A local reporter wrote in a Cover Story:
Karen's first-hand account of her illness gave an honest, heart-wrenching depiction of what it is like to live with debilitating pain day-to-day. – http://www.kpaddock.org
May I humbly suggest you read it.
See for FDA links on the antibiotic issue.
In book form it has been edited by a medical doctor that has the same condition has Karen had. When bought through the Spinal CSF Leak Foundation 100% of the royalties go to them, to support them, just in case anyone thinks I'm posting this to promote the book. The earliest draft of the book is found on http://www.kpaddock.com for free.
I do not know what motivated you to write your article. I do know from it that far more time needs to be spent with people in Chronic Pain, to understand the realities of their life.
When a person in Chronic Pain that has been taking opiate pain medication under a competent doctors supervision for ten years, is able to function, take care of their family, hold a job, is without warning told then can not have it any more, “tough luck”. What are they to do? They resort to street drugs and become the very victims this currently policy is trying to prevent.
People in Chronic Pain have typically already tried multiple rounds of physical therapy, bio-feedback, meditation, exercise and the list goes on, with no relief from the pain. What are they to do?
Not having Chronic Pain myself, I will never claim to understand it. I did watch my wife suffer with it for 20+ years. What exactly is the agenda here? None of us such as Advocates like myself nor the sufferers have figured this out yet. Can anyone please explain? To us it appears as an attack on the most vulnerable.
This is one of the many comments I received about your article: “…Chronic problems frustrate doctors and they blame the patient rather than look at themselves. …” or support research to find real solutions to Chronic Pain. No one chooses to live with Chronic Pain each and every moment of their lives.
You might want to make a run to the store and pick up some Imodium anti-diarrhea medication before they run out. This has now been caught up in the Anti-Opioid fever sweeping regulators and clueless politicians. Nothing worse than running out when you have the runs…
Some individuals are taking high doses of loperamide to treat symptoms of opioid withdrawal. So now non-abusers get to suffer the consequences because of abusers.
“Safety Announcement [1-30-2018] To foster safe use of the over-the counter (OTC) anti-diarrhea drug loperamide, the U.S. Food and Drug Administration (FDA) is working with manufacturers to use blister packs or other single dose packaging and to limit the number of doses in a package. We continue to receive reports of serious heart problems and deaths with much higher than the recommended doses of loperamide, primarily among people who are intentionally misusing or abusing the product, despite the addition of a warning to the medicine label and a previous communication. Loperamide is a safe drug when used as directed.
Loperamide is FDA-approved to help control symptoms of diarrhea, including Travelers’ Diarrhea. The maximum approved daily dose for adults is 8 mg per day for OTC use and 16 mg per day for prescription use. It is sold under the OTC brand name Imodium A-D, as store brands, and as generics. Loperamide acts on opioid receptors in the gut to slow the movement in the intestines and decrease the number of bowel movements. It is safe at approved doses, but when much higher than recommended doses are taken, it can lead to serious problems, including severe heart rhythm problems and death.
Patients and consumers should only take the dose of loperamide directed by your health care professionals or according to the OTC Drug Facts label, as taking more than prescribed or listed on the label can cause severe heart rhythm problems or death. If you are using OTC loperamide and your diarrhea lasts more than 2 days, stop taking the medicine and contact your health care professional.
Seek medical attention immediately by calling 911 if you or someone taking loperamide experiences any of the following, and tell health care professionals the person has been taking loperamide:
• Fainting • Rapid heartbeat or irregular heart rhythm • Unresponsiveness, meaning that you can’t wake the person up or the person doesn’t answer or react normally
Health care professionals should be aware that using much higher than recommended doses of loperamide, either intentionally or unintentionally, can result in serious cardiac adverse events, including QT interval prolongation, Torsades de Pointes or other ventricular arrhythmias, syncope, and cardiac arrest. In cases of abuse, individuals often use other drugs together with loperamide in attempts to increase its absorption and penetration across the blood-brain barrier, inhibit loperamide metabolism, and enhance its euphoric effects.
Some individuals are taking high doses of loperamide to treat symptoms of opioid withdrawal. If loperamide toxicity is suspected, promptly discontinue the drug and start necessary therapy. For some cases of abnormal heart rhythms in which drug treatment is ineffective, electrical pacing or cardioversion may be required.
Also counsel patients to take loperamide only as prescribed or according to the OTC Drug Facts label and advise patients that drug interactions with commonly used medicines may increase the risk of serious cardiac events.
We previously issued a Drug Safety Communication about this safety concern and added warnings about serious heart problems to the drug label of prescription loperamide and to the Drug Facts label of OTC loperamide products. We are continuing to evaluate this safety issue and will update the public when more information is available.”
https://www.fda.gov/downloads/Drugs/DrugSafety/UCM594394.pdf
~~DISCUSSION~~
Karen was diagnosed with Lupus at one point.
Around that time we cleaned up our diets, went organic as much as possible, got the shampoos, soaps, and other chemical based stuff, like Fluoride in the toothpaste, out of the house, and off our bodies, the symptoms for Lupus and Rheumatoid Arthritis went away.
Undiagnosed food sensitivities and allergies, more common that most realize, can cause Lupus/RA like symptoms in some people.
Nightshade plants, that are very common in our diets in many different forms, are particularly prone to mimic the symptoms of Lupus and RA.
http://www.diagnosisdiet.com/nightshades/ https://healingautoimmune.com/list-of-nightshades-foods
Everyone with non-textbook problems should keep a food journal, as symptoms may appear up to four days after you ate the food that you are reacting too.
For cleaning supplies we switched to White Vinegar and Apple Cider Vinegar for food related items. Switched to Hemp based soaps and shampoos.
June 17th 2017
Is famed comedian Jerry Lewis the latest victim of Fluoroquinolone antibiotics Cipro or Levaquin?
Does anyone know if the antibiotic was Cipro or Levaquin, that the FDA says should not be used for uncomplicated UTIs? What little that has been reported matches the symptoms of Fluoroquinolone poisoning.
“LAS VEGAS (KSNV NEWS3LV) — Famed comedian Jerry Lewis is in the hospital for a 12th straight day. The 91-year-old legend was admitted June 2 to be treated with antibiotics for a urinary tract infection.
Since then, Lewis has developed other complications, according to people close to the entertainer. It was believed Lewis was on track to be discharged from the hospital over the weekend, but his health worsened late last week.”
Lewis, 91, lives in Las Vegas.
Sources:
http://news3lv.com/news/local/entertainer-jerry-lewis-remains-in-las-vegas-hospital
http://news3lv.com/news/local/comedian-actor-jerry-lewis-in-las-vegas-hospital
http://www.kpaddock.com/fq has links to the FDA data and related Fluoroquinolone antibiotic issues.
~~DISCUSSION~~
“A few days ago, Bob Paddock made the long trek from Pennsylvania to Toronto to be interviewed for our new Doc on Chronic Pain. Hearing first hand about Karen's long and hard fight for appropriate diagnoses and medical care, of a horrificly painful CSF leak- makes me all the more “on fire” to right the wrongs done to us as pain patients and GET OUR STORIES OUT THERE. Thats why I #GivePainAVoice.” - Movie Producer Tina Petrova.
http://www.pandemicofdenial.com/
I spent Monday Sept. 26 2016 with Tina Petrova, award wining movie producer, filming Karen's story for the documentary movie “Pandemic of Denial ~ The World Health Crises” about Chronic Pain.
At one point even the cameraman was crying as I discussed CSF Leaks and how she was poisoned by Levaquan antibiotics.
The movie will be released in late 2017/2018 time frame.
http://www.pandemicofdenial.com/
~~DISCUSSION~~
“… researchers measured inflammatory markers in cerebrospinal fluid …”
http://kellybroganmd.com/potential-driver-suicide/
~~DISCUSSION~~
Karen was diagnosed with a “only a 3 mm” herniation. The official definition is 5mm to have Chiari. This diagnoses is what sent her down the path of CSF Leaks due to pseudo Chiari from low cerebral spinal fluid.
Karen ultimately took her own life to stop the pain. She will be gone three years on August 7th. Karen's Journal is now required reading at Duke School of Medicine to educate future Neurologists and other doctors about the reality of Chronic Pain and CSF Leaks.
“Karen's first-hand account of her illness gave an honest, heart-wrenching depiction of what it is like to live with debilitating pain day-to-day.” – Cover Story from the local news paper. http://www.kpaddock.org with more details here: http://www.kpaddock.com/book
While Karen never had Chiari surgery she did have surgery on her neck to remove dried blood pressing on nerves. So she was a Zipper Head. The doctor considered the surgery a complete success due to the removal of the dried blood. Karen considered the surgery a complete failure because it did not diminished her neck and head pain in any way.
In the photos below one from before her car accident and being poisoned by the antibiotic Levaquin, the other a few weeks from before her suicide and the last picture ever taken of her.
Look closely in this video, you see that she is wearing a TENS unit on the back of her neck.:
From Karen's Journal:
Saturday, June 29, 2013 at 2:20pm EDT * I 'pretend' that I am not hurting, when I am with others. It's hard. *
~~DISCUSSION~~
Sugar is as Addictive as Cocaine - Here's How You Can Kick the Habit - By Christina Lavers
“Some of the largest companies are now using brain scans to study how we react neurologically to certain foods, especially to sugar. They’ve discovered that the brain lights up for sugar the same way it does for cocaine.” ~ Michael Moss, Salt Sugar Fat: How the Food Giants Hooked Us
…
Sugar Addiction and the Brain
A growing body of research has demonstrated that sugar interferes with the brain’s reward processing centre in a similar way that narcotics and recreational drugs do, with sugar addicts suffering uncomfortable withdrawal symptoms when they attempt to limit their intake. In fact, one addiction study showed that 93% of animal subjects regularly chose sugar water over cocaine.
This emerging view of sugar as an addictive and dangerous substance has led researchers to investigate ways to help people curb their sugar intake in the hopes of reversing this destructive trend. Recently, Queensland University of Technology (QUT) in Australia looked at the possibility of using drugs commonly used to treat nicotine addiction as a means to assist people to improve their health by reducing their cravings for sugar. This study, published in by international research journal PLOS ONE, found that smoking cessation drugs could also be used to treat sugar addiction in animals, clearly highlighting the similarities between sugar- and narcotic-addiction in the brain.
…
References:
~~DISCUSSION~~
In the opening statements of the November 5th FDA meeting, where Karen's Journal was part of the evidence that day, the Chair said that 'Retinal Detachment would not be discussed today'. New paper just published about FQ's being linked to Retinal Detachment:
Paywall version of the actual report: http://archopht.jamanetwork.com/article.aspx?articleid=2499851
~~DISCUSSION~~
This would be great to show your family so that they understand why you have headaches:
“The Mystery Headache: Migraine, Positional Headache, Spinal Fluid Leak?”:
https://www.youtube.com/watch?feature=youtu.be&v=QyvWxobqKrc
~~DISCUSSION~~
https://www.dsiac.org/resources/dsiac_journal/advances-combat-casualty-care-wounded-warrior
“When combining the properties of foam generation, two-part epoxy systems, and biomedical application, the result is expansive medical foam…” May be why you think this is relevant to Leaks. This already does exist in form used for spinal injuries, the problem is the uncontrolled expansion puts pressure on the spinal cord which can lead to significant problems.
It is actually the 'DPC Dressings and Hydrogel Scaffolds' that will lead to some useful Leak treatments due to the ability of the electrode potentials to direct the flow and placement.
“… Electrospinning a fiber is the mechanism by which a polymer-laden fluid can be electrically excited into depositing itself in an extremely thin stream down to a ground plate. Upon reaching the plate, the fiber’s solvent will have evaporated, and what is left is a woven fabric imbued with chemical structures within the fibers at the nano-scale. The surface-to-volume ratio on such fibers is absolutely unmatched anywhere in metallurgical or other material pursuits, allowing for highly unique effects on human tissue interaction. …”
~~DISCUSSION~~